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    Monday, July 27
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    Home»Conditions»Braille butterfly trail highlights rare disease
    Conditions

    Braille butterfly trail highlights rare disease

    healthylife7By healthylife7July 27, 2026No Comments3 Mins Read
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    A man, Clarke Reynolds, holding a piece of paper reading "Touch Me!" in front of a butterfly art design made up of lots of dots.
    Mr Dot, real name Clarke Reynolds, has created a butterfly trail in Brighton to raise money for The Lily Foundation [Leanne Rinne / BBC]

    A butterfly art trail is to be unveiled in Brighton by a braille artist to help raise awareness of a rare disease

    Clarke Reynolds, better known as Mr Dot, has designed 10 butterflies to be hidden around the city’s North Laine area

    The butterflies have been installed to raise money for The Lily Foundation, a Surrey-based charity raising awareness of mitochondrial disease, with braille incorporated into the design to share about the rare condition

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    Reynolds said: “The butterfly is a symbol of hope.”

    He added: “If my art can improve someone else’s life and find a cure than what better way to do it than with a butterfly

    “If we talk about diseases then it becomes normal, and it’s not hidden away like the butterfiles are.”

    Beginning at Brighton railway station, the butterfly trail runs until 31 July and winds through North Laine, ending at the Indelible Fine Art gallery where an exhibition is being held in aid of The Lily Foundation

    A woman, Liz Curtis, wearing a t-shirt with pink, purple and blue letters reading "Lily" on it. The dot of the letter I is a pink and purple butterfly.
    The Lily Foundation was set up by Liz Curtis, whose daughter Lily died of mitochondrial disease in 2007 [Leanne Rinne / BBC]

    The foundation, based in Warlingham, was set up by Liz Curtis, in honour of her daughter Lily, who died aged eight months in 2007 of mitochondrial disease

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    Mitochondrial disease is a term used to describe conditions caused by faulty mitochondria and can affect different parts of the body including the brain, heart and liver

    There is currently no cure for the disease

    The Lily Foundation’s aim is to raise awareness of the disease, to support families, and to ultimately find a cure for the condition, Curtis said

    She added: “Unless we start talking about it and hearing about it, that’s our way forward to finding a cure

    “It’s a terrible diagnosis, and the disease is very, very cruel

    “We don’t want other families to be in the same position that we were in. Finding a cure is our ultimate aim.”

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    More on this story

    • Babies made using three people’s DNA are born free of hereditary disease

    • Braille artist Mr Dot creates children’s book

    Related internet links

    • The Lily Foundation

    Braille butterfly highlights rare trail
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