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‘Such a relief’: Longford woman with rare disease very positive after drug approval

By healthylife7August 26, 20260

A North Longford woman with the rare, neuromuscular disease Friedreich’s ataxia has said she is ‘very positive about the future’ after HSE Skyclarys drug reimbursement decision. On Tuesday, the Health Service Executive approved the reimbursement of the drug Skyclary after the drug company Biogen made a significantly improved offer to the HSE. The HSE Drug…

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‘Such a relief’: Longford woman with rare disease very positive after drug approval

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‘Such a relief’: Longford woman with rare disease very positive after drug approval

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