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The Rare Disease Center at Seoul National University Hospital recently signed a memorandum of understanding with the Korea Orphan & Essential Drug Center, the hospital said on the 13th. It marks the first time a tertiary general hospital has entered into a formal agreement with the Korea Orphan & Essential Drug Center
Moving beyond seeking advice only when needed, the two institutions will now regularly exchange consultation required at the clinical front line. The aim is to help patients with rare diseases secure necessary information and treatment directions more quickly, without wandering in search of the medicines they need
Specifically, the two sides will cooperate in operating projects and programs, as well as in holding seminars, academic conferences and meetings. They will also improve the efficiency of supplying and utilizing rare and essential medicines to build a “patient-centered support system.”
“This agreement is significant in that it establishes a practical cooperation system to ensure that the rare and essential medicines needed by patients with rare diseases can be supplied in a timely manner,” said Chae Jong-hee, director of the Rare Disease Center and professor of clinical genomic medicine at Seoul National University Hospital. “As the first cooperation model with a tertiary general hospital, it will serve as an opportunity for nationwide expansion going forward.”
#SeoulNationalUniversityHospital#RareDisease#EssentialMedicines#Healthcare#PatientCare#MOU#KoreaHealth
Original reporting by Ahn Kyung-jin for Seoul Economic Daily
AI-translated from Korean. Quotes from foreignxact original wording
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