By: Yolanda James
The Neurofibromatosis and Schwannomatosis Patient and Family Symposium will be held virtually Saturday, Aug. 22, from 9 a.m. to noon. The symposium is free and open to people affected by neurofibromatosis and schwannomatosis, as well as their families, loved ones and caregivers
Neurofibromatosis (NF) and schwannomatosis are genetic disorders that predispose patients to develop tumors of the nervous system. NF1, the most common form of neurofibromatosis, affects approximately 1 in 2,500 births. Tumors associated with these conditions can occur throughout the nervous system, including the brain, spinal cord and peripheral nerves. Most are benign, although a small number can become cancerous
Alex Mohler, MD, MS, Associate Professor of Clinical Neurology in the Division of Neuro-Oncology and Director of the Vanderbilt-Ingram Cancer Center Neurofibromatosis Clinic is the symposium chair
“Until recently, we have had very few options for managing the challenges associated with these conditions,” Mohler said. “Our annual symposium brings the latest information directly to patients and families in our region who are affected by NF and schwannomatosis.”
Participants will receive updates on current treatment options, clinical programs and research initiatives available through Vanderbilt-Ingram. The event will highlight support services available for adults and children living with NF and schwannomatosis. Attendees will also learn about reand the Children’s Tumor Foundation
Click here to register
